Social Stories For Autistics | Genetic Autism | Pain Management Discussion

Описание: Social Stories For Autistics | Genetic Autism | Pain Management Discussion #autism #22q

Welcome to Australian YouTube Channel "Ok Aussie Vlogger" with Dyan & Matt 👋

I'm an Australian Autistic Vlogger with ASD (Classic Autism), ADHD, Tourette's, OCD, Ehlers-Danlos, ME/CFS, Dystonia & Seizures because of a life-threatening rare genetic chromosomal condition known as "22q" or more fully; 22q11.2 Deletion Syndrome, and I love vlogging my life in Perth, Western Australia - Come join me and watch my vlogs!

I have experience in Social Welfare Work, Dancing Teacher, Nail Technician, Abstract Artist, Disability Advocate, Christian, Psychology, Philosophy & a passion for animals, freedom & self sufficient ways of living/ functioning in many ways.

I love vlogging my daily life and this is my living journal through these vlogs. My story of a harsh struggle for staying here due to my life limiting syndrome of age 41 when I'm 50s and very unwell.

I hope this can be a safe place you find a common ground and relatability with viewing my vlogs.

"I'm hidden, but I'm holy."

Please Like, Subscribe and Click the Notification Bell!

Social Stories, created by Carol Gray, are personalized short narratives for autistic individuals, using simple language and visuals to explain social situations, expectations, and appropriate responses, reducing anxiety and building skills for events like transitions, new people, or rules, by describing 'who, what, when, where, and why' from a positive, first-person perspective. They work by breaking down complex social cues into understandable steps, offering concrete strategies, and describing others' feelings, making challenging situations more predictable and manageable for the individual.

A Pain Management Specialist is a doctor with advanced training in diagnosing and treating complex acute and chronic pain, using a multidisciplinary approach that combines medications, procedures (like nerve blocks), physical therapies, and behavioural treatments to improve function and quality of life, often coordinating with other health professionals. They focus on finding the source of pain and creating personalized plans to relieve or manage it, aiming to reduce reliance on heavy medication and surgery where possible.

22q11.2 deletion syndrome (often called 22q or DiGeorge syndrome) can be associated with chronic and acute pain, though the severity varies greatly between individuals.
Pain in 22q11.2 deletion syndrome is often linked to the following, according to various studies and reports:
Musculoskeletal Issues: Leg pains, muscle cramps, and joint pain are frequently reported. Scoliosis (curvature of the spine) is common and can cause discomfort.
Low Calcium (Hypocalcemia): Many individuals with 22q have low calcium due to hypoparathyroidism, which can cause severe muscle cramps, spasms, and twitching.
Pain Sensitivity: Some research suggests that 22q11.2 deletion syndrome is associated with low activity of the COMT enzyme, which plays a role in regulating pain signals, potentially making individuals more sensitive to pain.
Frequent Infections: A weaker immune system can lead to painful, frequent ear infections and infections in other parts of the body.
Other Potential Causes: Arthritis, headaches/migraines, and, in rare cases, painful, chronic conditions related to skeletal abnormalities.

#autism #22q #vlog #autistic