Today is Rare Disease Day 💜
Автор: Servier
Загружено: 2026-02-28
Просмотров: 101
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We had the pleasure of speaking with Morgan, mother and full-time caregiver to Madilynn, who lives with spinocerebellar ataxia type 5 — one of the rarest forms of ataxia.
Morgan shared her family’s journey through years of uncertainty, the challenges of raising a child with a rare condition, and the strength they found in honesty, resilience, and joy.
Her message to other families facing a rare diagnosis is a powerful reminder: your feelings are valid and your child remains the same child you love.
You can also find Morgan @mightymadilynnon Instagram.
#RareDiseaseDay #SCA5 #RareDiseaseAwareness #RareDisease #PatientsVoice #WeAreServier #MovedByYou
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