A caregiver's perspective into caring for a child with Netherton Syndrome
Автор: Rare Skin Conditions Society Singapore
Загружено: 2022-01-16
Просмотров: 475
Описание:
Apart from the physical commitment a rare skin condition demands, caregivers also go through emotional and mental turmoil as they are subjected to ignorant questions and ostracism by others about their child, which can be deeply hurtful and leave a lasting emotional impact. And even more so for a young child.
Watch this video to find out more about Elaine’s experiences as a caregiver so we can build a kinder community to better support patients with rare skin conditions. We are all different, inside and out, and this is a part of humanity that we should all learn to embrace.
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