Chiari Malformation: Mum Launches Support Group in Leeds for Rare Brain Condition
Автор: Universal Moments
Загружено: 2025-12-14
Просмотров: 2
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Chiari malformation brain condition support group Leeds rare neurological disorder awareness NHS symptoms surgery syringomyelia.
Discover the inspiring story of Julia Brannigan from Guiseley, who started the first Chiari malformation support group in the north of England. After her son Joe's diagnosis with this rare brain condition, Julia partnered with the Ann Conroy Trust to create a community for those affected.
Learn about Chiari malformation, where the lower brain pushes into the spinal canal, causing symptoms like numbness, headaches, and muscle weakness. Explore the challenges of living with this condition, including the need for decompression surgery, as Joe prepares for his operation.
Join the conversation on raising awareness for Chiari malformation and syringomyelia. The support group met in Leeds on November 27th, with the next gathering planned for January 29th, welcoming people from Yorkshire and Lancashire to share experiences and feel less isolated.
This video highlights the importance of support groups for rare conditions, providing connection, information, and hope for families dealing with Chiari malformation.
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