I Have Cancer, Myelodysplastic Syndrome, MDS, Neutropenia, Severe Osteoporosis, Heart Failure

Описание: My journey has some lessons about doctors and diagnoses. Please watch this video and see if there is something that might help you.

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Update: February 6, I had an morning appointment to have a blood draw for multiple tests as part of my chemotherapy. The morning of the blood draw I had a nice QSO with VE6CQ and then DF2PY on 20 meters. All seemed okay but I was weak. Amir had asked a few times how I was doing and I had put him off with an answer that I would email. I basically had said the same thing to Rick and Wolf. After my quick hello with Wolf, Eileen drove us to Kaiser in Lincoln CA. From the handicap parking area, I walked from the car and got about 30 feet and was out of breath. So, I waited until I felt better and continued on using my walker. It was about 100 feet to the laboratory and I had to stop 3 times. After I checked in, and waited for a phlebotomist, the first of those told me to sit in a waiting area and wait for a nurse to come over to check on me. Pretty soon it was a crowd of nurses, firemen and ambulance personnel because they called 911. I was in distress, cyanotic and looked like I was dying. They called Eileen who was in the car and told her to come in right away. I was transported from that Kaiser facility to the Kaiser Hospital about 10 miles away. I was admitted to the ER in critical condition. My eyes were yellow and my skin was gray. Blood counts showed my Troponin and D-Dimer were elevated again. I was suffering from severe anemia, severe neutropenia and that I had very, very low platelets. In other words, my blood tests showed that I was ill. My oncologist was contacted and she set up 2 units of red blood cells. It was late yesterday when those were finished and I asked to go home. There were no ICU beds and I needed to be in isolation. Also, honestly, the nurses and the care was terrible. I never had my medications which were ordered on my arrival. Also, when Eileen was able to come into the room, it was many hours later. She asked about Saline and my meds. Saline was started only after she demanded it and my meds never got there. So, I had some in my pocket and I took them way too late. I was in terrible pain. I said I wanted to go home and the doctor agreed with some warnings. Eileen drove and helped me into the house as I could barely walk. I was just too weak. I had almost real time access to many of the tests that were run so I had an idea of what was going on with me. The cancer that I have is taking its toll and the chemo just made things worse. So, I am home. Still feeling very weak. I am not thinking clearly and I hope this makes some sense.