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Vici Syndrome: Emmy's story | Action Medical Research
Автор: Action Medical Research
Загружено: 2024-03-19
Просмотров: 10937
Описание:
Emmy has Vici syndrome, a very rare and life-limiting genetic disorder. Sadly, there is currently no cure or effective treatment and most affected children lose their lives at a very young age. Action Medical Research is funding research to better understand and target the cellular processes that go wrong in Vici syndrome – and to test existing drugs that could help.
Read Emmy's Story: https://action.org.uk/research/family...
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