Navigating Insurance Barriers as a Rare Disease Patient
Автор: The Sumaira Foundation
Загружено: 2025-12-17
Просмотров: 25
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Patients living with rare conditions in the US frequently face extra complexities when seeking access to specialized treatments, off-label therapies or less common care pathways. Prior authorizations may take longer, documentation requirements may be more intensive and appeals may present additional hurdles.
We were joined by Joe Touschner (Senior Policy Health Advisor, National Association of Insurance Commissioners), who demystified key aspects of the health insurance system that often present barriers for rare disease patients . This webinar was curated specifically for the rare disease community to equip you with clarity, practical steps and confidence to better navigate insurance processes.
In this webinar, you'll learn about:
The basics of prior authorization
How to navigate health insurance appeals
How insurance rules vary by state and by plan type and why state insurance department resources matter.
Key tools and resources for patients
This webinar was made possible with support from Amgen and Genentech.
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