Carol-Anne’s Life with Amber (age 20) | CDKL5 in Color Podcast | Episode 14
Автор: CDKL5 in Color
Загружено: 2025-04-18
Просмотров: 8
Описание:
Carol-Anne is one of the OG CDKL5 moms! Her daughter, Amber, is nearly 20 years old and Carol-Anne has been on the scene getting involved for CDKL5 even before her daughter was officially diagnosed. She’s co-founder of CDKL5 UK, a professional social worker, and is passionate about supporting families, raising awareness, and challenging assumptions.
In this latest episode, we talk with Carol-Anne about the early days of diagnosis, what transitioning to adulthood has been like and the challenges of navigating social systems in the UK. We also talk about the importance of learning to understand our children’s unique methods of communicating, and how that clarity matters for family quality of life.
Thanks for joining us, Carol-Anne!
SHOW NOTES: https://open.spotify.com/episode/5tpG...
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