Updates in Pulmonary Hypertension from the USA – Colleen Brunetti of the PHA

Описание: In this presentation, Colleen Brunetti, M.Ed.—an advocate, author, speaker, and PH survivor—provides a comprehensive update on the landscape of Pulmonary Hypertension support and advocacy within the United States. Designed for an audience ranging from patients and caregivers to doctors and allied health professionals, this talk outlines the latest initiatives from the Pulmonary Hypertension Association (PHA) and the critical challenges facing the community today.

Key Topics Covered:

Updates from the PHA The presentation introduces the PHA's new online home, designed as a hub for living with PH, caregiver resources, and continuing education for medical professionals.

PH Care Centers (PHCCs) & Research Colleen discusses the role of PH Care Centers in providing easier access to comprehensive care, ensuring appropriate medication usage, and facilitating earlier diagnosis. She details the scope of the current network, which includes 108 Centers of Comprehensive Care and 26 adult Regional Clinical Programs. The session also highlights the growth of the PHAR (PHA Registry) program, which now has over 4,000 patients enrolled across 80 participating centers.

Advocacy Efforts The video outlines upcoming national advocacy events, specifically noting that "Hill Day" is returning in March 2026. It emphasizes the strategic importance of state-level advocacy, noting that local policy changes are often the first step toward broader societal value changes.

Current Challenges in the US Healthcare System The talk concludes with a candid look at the systemic hurdles facing PH patients in the USA. Issues discussed include:
Vertical integration and monopolies
"Fail-first" or step therapy policies
The role of Pharmacy Benefit Managers (PBMs) and prior authorizations
Difficulties regarding oxygen coverage and reimbursement
External impacts from organizations like ICER and Drug Pricing Review Boards

Learn more at https://ph-ksp.com/