Interviewing Andrea (a mother to a PKU child)
Автор: E.S.PKU
Загружено: 2025-02-17
Просмотров: 338
Описание:
Watch an indepth interview of Andrea recorded at E.S.PKU 2024 in Porto.
Andrea is the mother to a PKU child from Serbia. She is a member of the Serbian PKU organisation.
Learn more about PKU and E.S.PKU at https://www.espku.org
00:00:00 - 00:00:19 Introduction
00:00:20 - 00:01:12 My PKU Story
00:01:13 - 00:01:50 Explaining PKU
00:01:51 - 00:02:52 PKU Diet
00:02:53 - 00:05:45 Living with PKU
00:05:46 - 00:06:38 Getting Support
00:06:39 - 00:08:42 PKU Challanges
00:08:43 - 00:10:43 Treatment Challanges
00:10:44 - 00:11:29 E.S.PKU Conferences
00:11:30 - 00:12:53 Unmet Needs
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