Bonafide HPP Episode 9 - Featuring Guest Host Aaron Blocker and Deborah Fowler
Автор: Soft Bones HPP
Загружено: 2024-12-05
Просмотров: 112
Описание:
Welcome to Bonafide HPP. A podcast designed to educate and support the families and caregivers of those affected with hypophosphatasia. As a mother and caregiver, host Deborah Fowler has discussions about this rare genetic bone disease with people from all over the world.
In this special episode, Aaron Blocker is guest hosting to discuss hypophosphatasia (HPP), a rare genetic bone disease that they live with. They interview Deborah Fowler, the founder of Soft Bones, a foundation that provides support, resources, and advocacy for those affected by HPP. Together, they explore the journey of living with HPP, advances in treatment, and the critical work Soft Bones is doing to raise awareness and provide hope to the HPP community. This conversation offers valuable insights for both patients and those looking to learn more about the condition.
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