Cystic fibrosis drug Trikafta helps most but not all with the deadly genetic disease
Автор: The Boston Globe
Загружено: 2023-09-20
Просмотров: 4998
Описание:
The cystic fibrosis drug Trikafta helps roughly 90 percent of people who have the deadly genetic disease. The drug enables patients to live a healthy life, start families, and think of a future. But for those left in the 10 percent, for whom Trikafta does not work, the daily struggles of living with a chronic, terminal illness continue. “Waiting for Hope, Fighting for Tomorrow” explores the lives of people at opposite ends of the spectrum: those who are benefiting from the drug, including young children who will escape much of the damage that CF causes, and those still waiting for their “miracle drug.”
Full story: https://bit.ly/45Vk1Ob
CHAPTERS:
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00:00 Introduction
01:09 What is Cystic Fibrosis?
01:58 A lengthy routine
02:36 Trikafta
07:52 Cystic Fibrosis in young children
10:53 A beacon of hope
12:23 The 10% still struggling
15:47 Emily's Entourage
18:03 Surrounded by loss
19:22 No cure
20:54 Fighting for a better tomorrow
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