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How has the Marfan diagnosis affected your family?
Автор: The Marfan Foundation
Загружено: 2013-09-19
Просмотров: 10033
Описание:
Teens with Marfan syndrome and related disorders from all over the country came together at a recent Marfan Foundation annual family conference to share their thoughts about issues likely to be of concern to all teens with these conditions.
Their honesty and insights are also sure to be eye-opening for parents of teens living with Marfan syndrome and related disorders. Teens who want to get connected to our teen group can email [email protected]
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