This Is What Meaningful Patient Involvement Looks Like

Описание: What a conversation. What a group. What a powerful reminder of why patient voices matter so deeply in research and clinical care.

We had the privilege of hearing from David Chuter, long-standing cancer survivor and advocate, who shared his journey from diagnosis to building support structures and shaping research culture. His commitment to collaboration across patient organisations — instead of duplicating efforts — truly resonated with me.

We also heard from incredible Voice Course graduates:

Peter Buttle, Elsa Ryder, Alan Sutton, Stephen Rowley

They spoke about confidence. About finally understanding the language of research. About being able to sit in a room full of experts — and asking the questions that truly matter.

That is impact!

What moved me most is how the Voice Course creates a shared language. It doesn’t only educate patient advocates. It also helps researchers and future healthcare professionals understand lived experience — not as an abstract concept, but as expertise.

I would love to see this course model established worldwide. Imagine if medical and nursing students met patients as educators before meeting them in clinical reality. How different would our healthcare culture be?

To David, Peter, Elsa, Alan and Stephen: my deepest thanks for your openness and generosity in sharing your experiences.

And David — thank you for your tireless commitment to patient empowerment and collaboration.

🎥 You can find the transcript here:
👉 https://www.kathrinkunze.com/medtalks/

MedTalk continues to connect professionals, researchers, and people with lived experience to strengthen trust and understanding in clinical research.

If you believe conversations like this are needed, please share this video with your network.

And as a small side note: I am currently looking for sponsors who would like to support future MedTalks — to make them even more accessible, sustainable, and professionally produced, and to give something back to the people who so generously contribute their time and expertise.

More conversations are coming. And I truly cannot wait.

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