IgG4 related disease: A patient experience
Автор: ERN ReCONNET
Загружено: 2023-06-19
Просмотров: 7881
Описание:
Short description of the content of the webinar.
The webinar focuses on the patient ́s experience during the course of IgG4 related disease.
All resources and more info about IgG4 Related Diseases can be found here: reconnet.ern-net.eu/disease-igg4/
Speakers:
Mr Patsalias studied economics at Erasmus in Rotterdam and work as
a manager Partners for all the network operators in the Netherlands. He started to get sick in 2005 (besides some childhood diseases) when he felt a small ball (1,5 cm) in his throat. Later, in 2014 the doctor diagnosed him with IgG4 related disorders.
Mr Ballarin is a nephrologist, he has worked first in France then
at a University Hospital in Barcelona (Spain) and at the “Universidad Autonoma de Barcelona”. He has been coping with an IgG4 related disease since 2018 and had to retire in 2019. He is the referent contact for the information of patients (IgG4 related disease) and member of the committee
of experts (“membership in progress”) at FEDER (Spanish Federation of Rare Diseases).
Moderator:
Dr. Van Laar
Dr. Jose Hernandez
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