Myeloma Patient Questions Answered: Genetic Testing, High-Risk Myeloma, Amyloidosis & More!

Описание: Dr. Joseph Mikhael, Chief Medical Officer of the International Myeloma Foundation, answers key multiple myeloma questions from patients and care partners. Learn about genetic testing, myeloma disparities, high-risk treatment, clinical trials, MGUS, smoldering myeloma, and amyloidosis.

Watch for expert insights on myeloma symptoms, risk factors, and treatment options. Have a question? Use #AskTheIMF on social media!

Watch to get expert insights and support for your myeloma journey. Have a question? Use #AskTheIMF on social media to submit yours!

Questions Answered in This Video:
0:00 - Introduction
0:56 - Should my children be tested for multiple myeloma?
2:33 - Why are multiple myeloma outcomes worse for people of color?
3:56 - Can multiple myeloma patients develop a second blood cancer like AML?
5:20 - Do new treatments work for high-risk multiple myeloma?
6:52 - How can I join a clinical trial for multiple myeloma?
8:10 - How are MGUS and smoldering multiple myeloma diagnosed?
9:55 - What is my risk of developing multiple myeloma if I have MGUS?
11:00 - What is amyloidosis, and how is it linked to multiple myeloma?
13:08 - For clinical trials that use dexamethasone, will there be parallel trials using prednisone for those allergic to dex?
14:09 - Is there a link between multiple myeloma and vitamin D deficiency?
15:30 - What does it mean for Kappa levels to rise while Lambda levels diminish?

Have a question that needs more personalized support? Call us! We’re here for you. The IMF’s InfoLine is available to answer your myeloma-related questions and concerns. Call us at 1-818-487-7455, email us at [email protected], or schedule your call at a time that works best for you at: https://www.myeloma.org/infoline.
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Improving Lives | Finding the Cure

Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of lives of myeloma patients while working toward prevention and a cure through our four founding principles: Research, Education, Support, and Advocacy.

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Category
Nonprofits & Activism
License
Standard YouTube License

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