"What is going on?" | Angelina's first Lafora Disease symptoms | Fighting the Rare
Автор: Chelsea's Hope Lafora Children Research Fund
Загружено: 2023-06-25
Просмотров: 5095
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Niki shares some of Ange's first Lafora Disease symptoms in this clip from the "Fighting the Rare" trailer. She was shocked to learn of her daughter's rare disease. We know it's a sentiment many families can relate to while searching for a diagnosis.
This documentary by Dr. Jordi Duran, Dr. Jaume Duran, and César Valdivia provides a glimpse into Lafora disease - family experiences, researcher testimonies, and the work to find treatments, and ultimately, a cure. We can't wait for it to release on June 26 and shine a light on this rare disease.
And we need YOUR help!! Please watch it: https://fightingtherare.com/ Please share with your networks.
You can read more details about Fighting the Rare and access our social media toolkit here: https://chelseashope.org/fighting-the...
(c) Copyright Chelsea's Hope Lafora Children Research Fund
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. Our mission is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments. Learn more: https://chelseashope.org/
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