MY VIEW ON THE POTENTIALLY NEW EHCP REFORM - post in description

Описание: I want to start with who I am

I am autistic
I go to a specialist secondary school

I did not always have the right support
Before this I was in mainstream primary school

And it took years to be accepted
YEARS

Years of being misunderstood
Years of being overwhelmed
Years of being told to cope in a system that clearly was not built for me

I did not suddenly become disabled one day
I did not suddenly need help
The support just took far too long to arrive

That is why I am so angry

Because what is being talked about now puts other kids exactly where I was
Or worse

I have support now
I have an EHCP

And even with that support education is still hard

So when the government talks about changing EHCPs and disabled rights I do not feel reassured

I feel alarmed

Because if it was this hard to get help under the current system what happens when it gets harder

And I need to be clear
I am not scared just for myself

I am scared for the other disabled kids
The ones still in mainstream schools struggling quietly
The ones waiting
The ones being told they are fine when they are not

The system right now is already failing

Families already wait years
Parents already have to fight constantly just to be taken seriously
Children already reach crisis point before anyone steps in

And instead of fixing that you want to change it

You want to raise thresholds
You want to standardise support
You want to make it harder to qualify for help

Disability is not standard

Autism is not standard

Trying to force disabled children into neat boxes does not make things fair
It makes children feel like they are the problem

Like they are too much
Too expensive
Too inconvenient

Are you really saying you will only help once a child completely breaks down
Once they are overwhelmed
Once they are in crisis

Because that is what this leads to

And do not pretend this is not about money

If you cut education support you will pay for it elsewhere
In mental health services
In crisis teams
In families falling apart

There are already many children telling their parents they cannot cope anymore
There are already young people feeling completely hopeless

That should be a warning
Not something to ignore

Then there is the idea of SEN hubs
One room inside a mainstream school

One room does not remove noise
One room does not remove unpredictability
One room does not make a school safe for a child who is overwhelmed the moment they arrive

If you actually cared about disabled children you would build more specialist schools
You would fund them properly
You would stop forcing children to adapt to environments that harm them

Yes it would cost money
But disabled children are not a budget issue

We are human beings

What makes this even worse is that these decisions are being made without listening

You are not listening to disabled kids
You are not listening to parents
You are not listening to teachers who see the damage every day

You do not understand what we have been through
You do not see the exhaustion after school
You do not see how much effort it takes just to survive the day

And yet you decide anyway

I am not accepting that

Not now
Not ever

If you want to improve the system speak to us
Actually listen
Stop making disabled children feel like a burden for needing help

Because behind every EHCP is a child trying their absolute best
And behind every child is a family holding everything together

And if it was not for my teachers and my parents I would not be here today
They believed me when the system did not
They supported me when things were hard

Support is not paperwork
Support is people

And you do not get to take that away and call it progress