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A View into Koolen-de Vries Syndrome
Автор: Koolen-de Vries Syndrome Foundation
Загружено: 2020-02-29
Просмотров: 14228
Описание:
Koolen-de Vries Syndrome was first identified in 2006 and is currently estimated to occur in 1 out of every 55,000 people. Hear from Dr. David Koolen, Dr. Bert de Vries and several Kool parents discussing GenIDA research, therapies, health conditions and more as you learn more about the syndrome. And enjoy the many joyful smiles of a very Kool community!
Video by Tom D. Garner Productions
Location: 2019 Koolen-de Vries Syndrome Patient Advocacy Summit in Park City, Utah
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