Season 3 Episode 1: Against All Odds: Finding a Treatment for SPG50
Автор: Veeva Systems Inc
Загружено: 2024-09-25
Просмотров: 428
Описание:
We can think of no better way to kick off Season 3. In a deeply personal and moving episode, two patient advocates share their stories of working tirelessly to deliver a safe and effective gene therapy for children suffering from spastic paraplegia 50 (SPG50). After his infant son received a diagnosis of this ultrarare neurodegenerative disease in 2017, Terry Pirovolakis began a daunting four-year journey to find a breakthrough treatment that would help Michael and other affected children. We also hear from Samuela Bellini, who wants to bring this therapy to children in Italy. Their achievements, and reflections, are an inspiration for our industry.
https://www.curespg50.org/donate
https://gofund.me/10d895c1
Subscribe to State of Digital Clinical Trials, a Veeva podcast, to get new episodes as soon as they are released.
Spotify: https://lnkd.in/e5pJ7saP
Youtube: https://bit.ly/3quY9FY
Apple Podcasts: https://lnkd.in/efMTxybk
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