Understanding CDKL5 Deficiency Disorder | CDKL5 in Color Podcast | Episode 28
Автор: CDKL5 in Color
Загружено: 2025-11-01
Просмотров: 9
Описание:
Episode 28: Understanding CDKL5 Deficiency Disorder
There are people all over the world whose children are living with CDKL5 deficiency disorder. We prepared the free eBook Understanding CDKL5 Deficiency Disorder for our fellow CDKL5 moms and dads. It is intended to give you an introduction to CDKL5 deficiency disorder in an easy-to-read format. In this episode, we discuss the major symptoms of CDD, some frequently asked questions that come up in our support group, and our own experiences caring for someone with this rare disease.
You don’t have to face this diagnosis on your own. You can find members of our CDKL5 community all over social media, in medical publications, online, and sometimes even in your own backyard. If you need help connecting, please let us know. Chances are we can help.
SHOW NOTES: https://open.spotify.com/episode/6ZdB...
Повторяем попытку...
Доступные форматы для скачивания:
Скачать видео
-
Информация по загрузке:
