Advancing Sickle Cell Disease Control in Africa:Data, Determinants & Genetic Insights|PAPERI Webinar

Описание: PAPERI Webinar Series – Recorded Session (27 February 2026)

This special session brings together two leading Kenyan experts whose work represents one of the most advanced and community-grounded approaches to Sickle Cell Disease (SCD) control in Africa.

SCD is one of the continent’s most significant inherited genetic disorders, and strengthening control programmes requires the integration of data systems, registries, genomics, and community-based health strategies.

In this powerful discussion, our speakers present real-world evidence from Kenya’s SCD Registries and Control Programme—offering a model that East Africa and the continent at large can learn from.

🎤 Featured Speakers
🔹 Benard Mwori Sorre
Talk: Proximate Determinants of Health Among People Living with Sickle Cell Disease
Topics covered include:
SCD as a lifelong genetic disorder
Social and environmental determinants of health
Community-based challenges and realities
Strengthening SCD control through local data
What is needed to improve outcomes for PLWSCD

🔹 Constance Nalianya Tenge
Talk: Implementing a Sickle Cell Disease Control Programme: The Role of Data and Registries
Topics covered include:
WHO-aligned intervention strategies
Importance of robust national registries
Using data for screening, diagnosis & resource allocation
Health system strengthening
What is required for sustainable national SCD programmes

🌍 Why This Session Matters
Kenya’s experience demonstrates how African-led expertise, rigorous data systems, and community-based insights can transform SCD management.
This webinar provides practical guidance for ministries of health, clinicians, researchers, and policy leaders across Africa.

📌 About PAPERI
The PAPERI Webinar Series spotlights African leadership in genomics, precision medicine, and public health.
Empowering African Genomics, One Conversation at a Time.