Stitching Strength: What I have learned about hope in ALS

Описание: In our November ALS Learning Series about hope with Dr. Richard Bedlack, he will review what he has learned about hope in health and diseases, including ALS.  He’ll talk about why it matters, where it comes from, what clinicians do to boost and to suppress it, and how he is trying to optimize it in his own clinic.

About the Speaker: Richard Bedlack, MD, PhD

Stewart, Hughes, and Wendt Distinguished Professor of ALS at Duke

Director of the Duke ALS Clinic

Dr. Richard Bedlack grew up in a small town in central Connecticut. He went to college at William and Mary in Virginia, then back to Connecticut for an MD and Ph.D. in Neuroscience at UConn. Finally, he came to Duke where he completed his medicine internship, neurology residency, neuromuscular fellowship, and Masters in Clinical Research Science. He is currently the Stewart, Hughes, and Wendt Distinguished Professor of ALS at Duke and Director of the Duke ALS Clinic. He has won awards for teaching and patient care, received ALS research grants, participated in ALS clinical trials, and published more than 160 ALS articles.  He is the leader of the international ALSUntangled program which utilizes social networking to investigate alternative and off-label treatment options for patients with ALS, and leader of the ALS Reversals program which attempts to understand why some people with ALS recover from it, and to make this happen more often. He lives in Durham, North Carolina with his wife Shelly, two mischievous cats, and a closet full of eye-catching blazers.
Timestamps:
0:00-4:47 Introduction to Les Turner ALS Foundation
4:48- 9:21- Introduction to presentation
9:22- 12:39 How I came to appreciate the importance of hope in ALS
12:40- 13:15 Literature Review
13:16 -13:41 Defining Hope
13:42- 14:47 Measuring Hope
14:48- 16:37 Importance of Hope: Association Studies
16:38 - 18:42 Possible mechanisms behind the benefits of hope
18:43- 20:15 Where does hope come from?
20:16- 23:02 Role of physicians
23:03- 24:45 Consequences of not providing hope
24:46-25:36 How I am trying to cultivate hope
25:37- 36:21 Avoiding burnout, staying positive
36:22 -37:46 I am careful about the words I choose
37:47-38:54 I remember that specific hopes can vary
38:55- 41:36 Some of my measurements will stabilize or improve
41:37-42:26 Hope to feel useful
42:27- 47:17 Hope to try experimental products
47:18- 45:31 Is there a cure?
45:32-46:30 Hope study in Duke ALS clinic
46:31 :48:06 Spreading the word
48:07- Q & A