SEEMYLIFE – RESEARCH PROJECT
Автор: ERN EYE
Загружено: 2024-02-05
Просмотров: 349
Описание:
“See My Life”: an international multidisciplinary research project to assess the quality of life of children with visual impairment due to a rare eye disease.
In Europe, rare eye diseases are the leading cause of severe visual impairment/blindness in children. This severe or total visual impairment may be accompanied by psychological distress for the children concerned and has a considerable impact on their quality of life and that of their families.
While severe eye diseases do involve great physical difficulties (severe sight loss), the psychological, emotional, relational and social impact is often not taken into account and is not well measured.
The SeeMyLife research aims to identify and quantify these different constraints and difficulties, so that they can be taken into account when proposing care and thus better adapt the quality of care for children with a rare eye disease.
More information: https://www.ern-eye.eu/see-my-life-re...
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