Better Research & Health Care with Patients & Next-of-kin Collaboration

Описание: https://lymphaticnetwork.org/

Better Research & Health Care with Patients & Next-of-kin Collaboration
Presented by Margareta Haag and Mikaela Friedman, PhD

About the Speakers:
Margareta Haag was the Executive Director of the International Association of Medical Laboratory Technologists (today, the International Federation of Biomedical Laboratory Science) until 2002, when she was diagnosed for the fourth time with lymphoma, a chronic condition. Margareta Haag founded the Swedish Association of Chronic Oedema in 1999 and was President from 2010-2024. She became the President of the Swedish Network Against Cancer (NMC) in 2018 and holds this position today. The Network Against Cancer comprises national cancer patient and interest organizations in Sweden. Margareta is a member of the Swedish Cancer Fund Expert Group, which investigates the implementation of the EU Beating Cancer Plan and the Patient Councils at GPCC (Gothenburg Center for Person-Centered Care), the Swedish Agency for Health and Care Services.

Dr. Mikaela Friedman is the External Relations Officer at Genomic Medicine Sweden (GMS), where she has played a key role since its inception in 2018. She has contributed to the development of national infrastructure for integrating precision medicine into healthcare. Dr. Friedman is responsible for GMS's collaboration with patient advocacy groups, educational initiatives, and international partnerships. She holds a Ph.D. in Molecular Biotechnology from the Royal Institute of Technology, Stockholm.

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About Lymphatic Education & Research Network (LE&RN):

LE&RN's mission is to fight lymphatic diseases through education, research, and advocacy. We seek to accelerate the prevention, treatments and cures for lymphedema, lipedema, lymphatic anomalies, and the continuum of lymphatic diseases.

About LE&RN

The Lymphatic Education & Research Network (LE&RN) is an internationally recognized non-profit organization founded in 1998 to fight lymphatic disease (LD) through education, research, and advocacy. Lymphatic diseases include lymphedema (LE), lipedema, and lymphatic anomalies. LE&RN is equally committed to investigating preventive and therapeutic benefits for a broad array of diseases that are impacted by lymphatic function, such as heart disease, obesity, AIDS, Rheumatoid arthritis, diabetes, and cancer metastasis.

To accomplish these goals, LE&RN sponsors research fellowship grants, an international patient registry and biorepository, live-stream symposiums, the peer-reviewed journal Lymphatic Research & Biology, weekly e-newsletters, scholarship grants to lymphedema therapists, conference travel awards to young researchers, and a vibrant website with features such as Ask the Experts, connecting patients with the field’s more renowned practitioners. LE&RN has Chapters and Centers of Excellence globally. In 2016, LE&RN created World Lymphedema Day on March 6th, which was established by unanimous vote of the United States Senate.

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