The Schinzel-Giedion Syndrome Foundation Rare Disease Day 2021 Video
Автор: The Schinzel-Giedion Syndrome Foundation
Загружено: 2021-02-26
Просмотров: 1668
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This video features many of our inspirational children and reminds us all that there is happiness, fun and hope even in the darkest times.
Please share our video and encourage your community to donate to the SGS Foundation this Rare Disease Day. We are raising funds to support research into SGS to find new treatments that will improve the quality and length of life of children living with SGS.
Help us to celebrate our wonderful children and their unique personalities. They are all very loved and are important parts of families around the world.
For further information about SGS and the SGS Foundation please visit:
www.sgsfoundation.org
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