💡 Why is the Rett Global Registry so important?
Автор: Rett Syndrome Research Trust
Загружено: 2025-07-22
Просмотров: 220
Описание:
Dr. Dave Lieberman of Boston Children’s Hospital explains how every family's participation in the Global Registry helps shape better treatments, supports smarter clinical trials, and accelerates the path to a cure.
From tracking seizure patterns to understanding GI and sleep disturbances, the Registry captures critical data across the spectrum of Rett syndrome. It’s not just about contributing to science — it’s about making a tangible difference for your child and the entire Rett community.
👉 Watch now to learn how your family can be part of this team effort.
📲 Join the Registry today at RSRT.org/registry
#RettSyndrome #ReverseRett #RettRegistry #RSRT
Повторяем попытку...
Доступные форматы для скачивания:
Скачать видео
-
Информация по загрузке:
