Episode 1 | Remarkable: Life with Rett Syndrome | Rett Syndrome Awareness 2020

Описание: This year our Remarkable families join us and answer questions about their lives with Rett Syndrome. We hope that you not only learn a little something from each of us, but also find a little comfort if you feel like you're in this alone - because you're not. We are with you and we support you!

In this episode, our families talk about

💜 How would you describe Rett Syndrome?
💜 Did you know about Rett Syndrome before your diagnosis?
💜 What where the first symptoms of Rett that you noticed?
💜 How did you feel once you were diagnosed?
💜 What advice would you give to a family with a new diagnosis?




We have not covered everything about Rett in these videos because, those were not our stories to tell. Reach out with your story if you feel ready, we'd love to hear from you.

Please hit 'like' and share each of these videos on Facebook and Instagram, so we can get the word out about Rett Syndrome for Rett Syndrome Awareness Month this October! Rett Syndrome life can be very intense already, and if you cannot bring yourself to watch these videos - it's okay. Consider sharing these videos instead, and bookmark to come back when you are ready.

✨ IMPORTANT ✨

If you suspect your child has Rett Syndrome, please seek professional medical help from your paediatrician or doctor. This video series was created to share our stories, for information and for support only, for Rett Syndrome Awareness Month 2020. Head over to the links below for more information that you can take to your doctor.


✨ LINKS ✨
Below are some links to more information about Rett, and what was mentioned in this episode:
What is Rett Syndrome
https://www.rettsyndrome.org/about-re...
https://reverserett.org/about-rett/

Natalie Weaver, Sophia's mum's Instagram -   / nataliecweaver  


✨ SUPPORT ONLINE ✨
rettsyndrome.org - https://www.rettsyndrome.org/
Facebook group - Rett Syndrome Family Support Forum -   / 250235058326930  
Rett Syndrome Association of Australia (RSAA) - https://rettaustralia.org.au
Reverse Rett - https://www.reverserett.org.uk/
Rett Syndrome Research Trust (RSRT) - https://reverserett.org/

⭐️Fundraising for a cure for Rett Syndrome ⭐️
Currently, there is no cure for Rett Syndrome but many incredible teams are working on it. These are just a few places where you can go to help fund a cure for Rett Syndrome and towards supporting our families. Please connect with them and ask them how you can help.

Rettsyndrome.org https://www.rettsyndrome.org/get-invo...
Rett Syndrome Research Trust https://reverserett.org/donate/
Rett Syndrome Association of Australia - https://rettaustralia.org.au/donate/
Girl Power 2 Cure https://www.girlpower2cure.org/donate/
Rett UK https://www.rettuk.org/fundraising-wh...
Ontario Rett Syndrome Association https://www.rett.ca/store/donation/