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Canavan disease, medically complex, life limiting/Making decision based on quality of life.
Автор: Courageous Parents Network
Загружено: 2015-03-05
Просмотров: 289
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"It's taken the specialists 11 years to get through to me." • Canavan disease, medically complex, life l...
The mother of a daughter with the life-limiting illness Canavan disease talks about how she frames the decisions based on her daughter's quality of life and how important it is to have The Discussion with the medical care team. If your child has Canavan disease or another pediatric life threatening illness, this mom's perspective may help you find your way. Visit www.courageousparentsnetwork.org for more videos.
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