Aaron Hunter: Terminally-ill Youngster's Mission to Make a Difference | Pride of Britain 2019
Автор: Pride of Britain Awards
Загружено: 2025-02-11
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If Aaron could have just one superpower it would be the ability to time travel. The nine-year-old wants to fast forward to the future and bring back a cure for children battling the rare condition he’s had since the age of two.
Aaron has ROHHAD, an extremely rare and complex disease that affects the function of every single system and organ within the body. The disease causes previously healthy children to gain weight and develop breathing difficulties. There are just 100 known cases worldwide, 12 of which are in the UK.
Sufferers face a daily fight for survival and many patients die before they reach their teens.
Months after being diagnosed, Aaron and his family founded the ROHHAD Association to raise awareness and money to fund research, as well as to offer support to other families and children with the syndrome.
Mum Elisabeth said: “Aaron is the epitome of what a hero should be. He inspires me every day to want to fund a cure because of how selfless he is and how much he puts himself out there to help others.”
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