Healthier Handoffs: Perspectives on Transitions in Care

Описание: ©2025 Ipsen Biopharmaceuticals, Inc. All rights reserved. December 2025. NON-US-004424

Transitions in care are challenging and can have serious consequences for people living with a rare liver disease and their families. Through expert insights shared and firsthand accounts from the community, virtual attendees will learn actionable healthcare self-advocacy considerations they can take through all of life’s stages.

Expert panelists include:

• Nitika Gupta, MD, Pediatric Hepatologist at Children’s Healthcare of Atlanta and Professor of Pediatrics at Emory University School of Medicine
• Daniel Pratt, MD, Gastroenterologist, Clinical Director of Liver Transplantation and Director of Autoimmune and Cholestatic Liver Center at Massachusetts General Hospital and Assistant Professor of Medicine at Harvard Medical School
• Susan Shanske, MSW, LICSW, Dir. Transitional Care Support, BRIDGES Adult Transition Program, Boston Children’s Hospital
Marissa, living with progressive familial intrahepatic cholestasis (PFIC)
• Nicola, primary sclerosing cholangitis (PSC) post-transplant living donor recipient
• Amber, living with primary biliary cholangitis (PBC)
• Jordan Sarbaugh, Mom, Co-Founder & President of BARE (Biliary Atresia Research & Education)

Chapters:

0:00 Welcome
1:48 Keynote: There is no “one-size-fits-all”
10:05 Panel: Understanding the experience and creating the support teens need
27:00 Panel: Healthcare providers building bridges to support patients
43:55 Panel: Transitions are lifelong
58:31 Closing Remarks