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CDKL5 Registry
Автор: Loulou Foundation
Загружено: 2020-06-26
Просмотров: 212
Описание: The CDKL5 Registry collects data on CDKL5 Deficiency Disorder for research and pharmaceutical development. Caregivers can also use the CDKL5 Registry to track their loved one’s symptoms. The CDKL5 Registry is funded by the LouLou Foundation and is a joint effort of the Orphan Disease Center at the Perelman School of Medicine, University of Pennsylvania. We also partner with the International CDKL5 Disorder Database, Connect CDKL5, and the CDKL5 Alliance.Find out why the CDKL5 Registry is so important – and register your child or loved one today! https://www.cdkl5registry.org/
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