Advocating for Access: How Policy Shapes the Future of Gene Therapy
Автор: AngelmanSyndromeFdn
Загружено: 2025-10-30
Просмотров: 30
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ASF CEO Amanda Moore talks with former Congressman Erik Paulsen, Chairman of the Institute for Gene Therapies, about how policy and advocacy are shaping the future of gene therapy for rare diseases like Angelman syndrome. They discuss the need for modernized healthcare policies, better access to treatment, and how collaboration across patient groups and policymakers can help make life-changing therapies available to all.
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Learn more about Angelman Syndrome Foundation at Angelman.org (https://www.angelman.org/) .
Follow us on Facebook ( / angelmansyndromefoundation ) and Instagram ( / angelman_asf ) and connect with our community.
Find an Angelman Syndrome Foundation Clinic at Angelman.org/as-clinics (https://www.angelman.org/as-clinics/) .
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