Life After DIAGNOSIS DAY - 3 min Trailer
Автор: Daniel DeFabio
Загружено: 2024-10-29
Просмотров: 70
Описание:
A trailer for our 2023 film about life after what can be the worst day of your life: the diagnosis with a Rare Disease. While rare families gathered at our 2019 film festival, some of them told their stories on camera for us. Eleven families told us how they made it through and how rare it is.
The short film covers the struggles with rare diseases including:
Okur Chung Syndrome
EB,
SYNGAP1,
Menkes Disease,
Bosch-Boonstra-Schaaf optic atrophy syndrome,
ADCY5 related Dyskinesia,
STXBP1
Directed by Daniel DeFabio 17 Minutes
Watch more films on rare disease stories on The Disorder Chanel --free on FireTV.
To arrange public or private screenings of this film contact us at
thedisorderchannel.com
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