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Julia's Story: From CLL Diagnosis To A Doctorate Study Of How CLL People Use The Internet.
Автор: CLL Support Association (CLLSA)
Загружено: 2014-11-20
Просмотров: 8220
Описание: Julia shares with us: her experience of CLL diagnosis, first questions, the general doctor's knowledge, how being selective when sourcing information is important, Julia discusses the importance of relationships and working together with her doctors, and following what's happening in the community. How this all lead to Julia's interest into how people use on-line communities and information resources to support and inform each other, That not all have access, are able or confident using the internet and there is a large older group of CLL patients we don't know much about.
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