Navy Pilot Matt Bellina on Fighting for the Right to Try
Автор: GoldwaterInstitute
Загружено: 2019-11-25
Просмотров: 1233
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Matt Bellina was a U.S. Navy pilot with a young family, but a diagnosis of amyotrophic lateral sclerosis (ALS, or Lou Gehrig’s disease) in 2014 took his life on a different path. Things that come effortlessly to most of us became a daily struggle for him. Before long, Matt was out of treatment options, facing a terminal diagnosis with little hope.
At the Goldwater Institute's 2019 Annual Dinner in Phoenix, Matt spoke about his struggle with ALS and his fight for the Right to Try, a law that became a game changer for Matt and his family. Under Right to Try—pioneered by the Goldwater Institute—terminally ill patients would be able to access investigational treatments yet to receive final approval by the U.S. Food & Drug Administration (FDA). And for patients like Matt who had already exhausted the FDA-approved treatment possibilities available to them, Right to Try could provide a needed jolt of hope. Matt became one of the trailblazers advocating for Right to Try laws, and he was on stage beside President Trump when Right to Try legislation was signed into federal law in May 2018.
Matt received the Goldwater Institute's 2019 Freedom Award, in tribute to and in celebration of his commitment to help give patients the Right to Try. These are his remarks at the dinner.
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