"Your baby has a blockage..." (The 18 - Week Ultrasound)

Описание: After a challenging 5-year infertility journey marked by multiple losses and a pcos pregnancy, our ivf journey led to a miracle. However, at 18 weeks, an ultrasound changed everything, marking the start of a high risk pregnancy. This story highlights the anxieties and fears of pregnancy after infertility, especially for those navigating advanced maternal age, and the moment the anatomy scan tech went quiet and my body knew: something was wrong.

In this video I’m sharing the full story of our 18‑week anatomy scan, the moment they found fluid around our baby’s belly, the weeks of Maternal Fetal Medicine visits, and the day a specialist at NYU told us our son likely had a rare condition called CHAOS — a fetal airway blockage where most babies don’t survive the pregnancy.

I’m not a doctor. I’m an infertility-over-35, PCOS, endo, IVF and NICU mom who’s been through the “perfect” scan turning into a “we have a big concern” conversation. Videos like “Our 20 Week Anatomy Scan Was Great But We Have A New Big Concern” made me feel less alone — now I’m telling the 18‑week version of that story from the other side of a CHAOS diagnosis, EXIT surgery, and 169 days in the NICU.

If you’re:
• 35+ and pregnant after ivf or infertility
• Waiting for your own 18 week anatomy scan and terrified of bad news
• Navigating a high risk pregnancy , scary ultrasound, or talk of “termination”
• Parenting a medically complex or NICU baby after fighting so hard to get pregnant

…this is for you.

Timestamps:
0:00 – After IVF & Losses… the 18-Week Scan That Changed Everything
0:40 – Over 35, PCOS, Endo, 5 Pregnancies & Finally an IVF Heartbeat
1:15 – Walking Into the 18-Week Anatomy Scan Thinking We Were Safe
1:50 – The Ultrasound Tech Goes Quiet & My Body Remembers Bad News
2:30 – “There’s Fluid Around the Belly” & Referral to Maternal Fetal Medicine
3:10 – Weeks of Testing: Fetal Echo, Amnio “Normal” but No Answers
3:45 – NYU Fetal Echo: Hearing the Word “CHAOS” for the First Time
4:20 – What CHAOS Diagnosis Means: Rare Fetal Airway Blockage & Survival Odds
4:55 – “Are You Continuing the Pregnancy?” – Facing Termination Talk
5:30 – How We Decided to Continue a High-Risk Pregnancy With CHAOS
6:10 – MRI Confirmation & Saying YES to a Baby With a Rare Diagnosis
6:50 – Birth Day: When Our IVF Miracle Met Medical Reality (EXIT Footage)
7:25 – 169 Days in the NICU: Surgeries, Monitors & Conversations No Parent Wants
8:00 – Life With a Medically Complex IVF Miracle at 4 Years Old
8:35 – Why Our First Family Vacation Matters So Much After CHAOS & NICU
9:10 – If You’re Pregnant After Infertility & Terrified of Bad News, This Is for You

In this video you’ll hear:
• What actually happened at our 18‑week ultrasound when the tech went silent
• How we went from “routine” scan to Maternal Fetal Medicine and MRI
• What a 28 chaos diagnosis is in plain language and what doctors told us
• How we decided to continue a pregnancy with a rare, life‑threatening diagnosis
• A quick look at birth, NYU EXIT surgery, 169 days in the 61 nicu
• What life looks like now with our medically complex IVF miracle at 4 years old

If you’re sitting in your own dark ultrasound room, or googling every line of your anatomy scan report, I want you to know: the story doesn’t end the day someone says, “something’s wrong.”
Hit subscribe for more raw infertility after 35, IVF pregnancy complication stories, NICU survival, and real-life motherhood with a medically complex child — the science, the soul, and the messy middle no one shows you.

Watch next:
• IVF Gave Me My Son. The NICU Nearly Took Him. [   • IVF Gave Me My Son. The NICU Nearly Took Him.  ]
• My Body Hid A Secret That Cost Me 6 Babies [   • My body was hiding a secret that cost me 6...  ]
• 35 Weeks Was NOT Safe: My NYU EXIT Surgery Story [   • 35 Weeks Was NOT Safe: My NYU EXIT Surgery...  ]
You’re not alone in this. 💜

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