Coming to terms with your child’s rare disease diagnosis
Автор: Rare Together
Загружено: 2024-04-30
Просмотров: 43
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Welcome to Episode 2 (Season 2) of Rare Together. In this episode, we had the honour of speaking to Megan from the USA and sharing her story with you.
Her son has been diagnosed with FOXG1 Syndrome, a rare genetic neurodevelopmental disorder that causes cognitive and physical disabilities from birth. During our chat, we explored her concerns as a parent, as well as her experience of coming to terms with her son's diagnosis, among many other topics.
The full episode is available now on our channel: • “I think rare disease has a branding probl...
While you’re there, don’t forget to like, subscribe, and share your thoughts with us in the comments. ✅
#RareTogether #Podcasts #RareTogetherPodcast #RareDisease #RareDiseaseAwareness #Shorts #YouTubeShorts #FOXG1Syndrome #FOXG1 #RareDiseaseParent
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