CF Buyers Club 2.0 Launch Announcement | North America Cystic Fibrosis Conference
Загружено: 2025-11-11
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Описание:
Gayle Pledger shares the story behind a global fight to make life-changing cystic fibrosis (CF) medicines available to everyone who needs them.
Recorded as part of the symposium “S06 – Cure (or Close) for All” on 23 October 2025 at the North America Cystic Fibrosis Conference, this talk traces the journey from battles in the UK, to international campaigns in Brazil, South Africa, Ukraine, Lithuania and beyond and unveils the plan to launch an affordable generic ETI as a lifeline for people still locked out of treatment.
You’ll hear about:
How CF families and activists challenged Vertex’s monopoly and forced them back to the table
Why thousands of people with CF are still excluded from modulators
What the coming generic ETI could mean for patients globally
The urgent next steps
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