Living with NBIA During the COVID-19 Pandemic
Автор: NBIADisorders
Загружено: 2020-04-14
Просмотров: 214
Описание:
Having a family member with NBIA during the COVID-19 pandemic presents a whole new layer of challenges. How do you protect loved ones with NBIA? Should you take them outside the house or let anyone in? How do you maintain their therapies and skills during a time of social isolation? What if they are in a clinical trial? And what should you do, if God forbid, they contract a serious case of the illness?
The panelists are Dr. Susan Hayflick, Dr. Penelope Hogarth and Allison Gregory of Oregon Health & Science University, and Katie Flores, a speech pathologist from Open Door Pediatric Therapy in Houston, Texas. Patricia Wood, President of NBIA Disorders Association will be the moderator.
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