Autoimmune Voices: Threads of Hope Episode 6 – Understanding Clinical Trials Part 2

Описание: In Part 2 of this 2-part episode, we continue our deep dive into clinical trials with physician-scientist Dr. Adam Schiffenbauer and patient advocate Alana Snowden, exploring how modern research is transforming autoimmune disease care.

Host Molly Murray leads a powerful conversation that breaks down the impact of clinical trials — not just on the future of medicine, but on the daily lives of people living with autoimmune disease.

Dr. Schiffenbauer explains how clinical trials:
✅ Provide the core answers patients rely on about disease course, symptoms, and treatment options
✅ Generate data that reshapes how autoimmune diseases are defined
✅ Use advanced tools — from genetics to microbiome testing to smartphone and wearable data — to better understand disease mechanisms
✅ Measure success not only by drug outcomes, but by the knowledge gained to help future patients

Alana offers a compelling look at how participating in a trial gave her clarity, confidence, and a sense of control over her autoimmune health. She discusses misconceptions she once held, why patient enrollment is essential for progress, and how being part of a trial made her feel like a true partner in research.

This episode dispels myths, empowers patients, and highlights why clinical trials are essential to advancing autoimmune research and improving care for generations to come.

👉 Continue your exploration of clinical trials with Part 1 if you missed it — and stay tuned for future episodes of Autoimmune Voices: Threads of Hope.

🔗 Learn more about autoimmune disease and clinical research at autoimmune.org

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0:06: Introduction and Overview
0:45: How Clinical Trials Contribute to Understanding Autoimmune Diseases
3:56: Patient Experience and Control Over Health
6:50: Types of Data Collected in Clinical Trials
9:09: Defining Success in Clinical Trials
10:28: Human Side of Participation
12:37: Sharing Research Results
15:19: Misconceptions About Clinical Trials
21:11: Advice for Potential Participants
24:04: Additional Resources