Edison The Great - Utah Caring Stories 10pm Apert Syndrome 2018 10 22

Описание: “Edison The Great”
By Doug Jessop
(ABC4 UTAH NEWS – Salt Lake City, UT)
The Dunn family loves music. Meet Edison, an expressive 4-year-old. I ask him how he plays the guitar and he does his best air guitar impression.
This active little boy takes some of that energy playing drums, especially with his Dad, Josh.
After chatting awhile, Edison exclaims; “I want to play drums.” Edison has a pretty cool setup with a mini version of a real-life drum set. Edison’s Dad, Josh, takes his seat at an adult size drum set and its game on. Edison plays, and Dad copies him. It is a solid 11 on the cool meter.
Josh Dunn gets emotional talking about his wife, Megan, and their three children – June, Edison and Franklin (also known as Frankie). “There is nothing more important than this little group of people.”
In meeting” Edison the Great” for the first time, you will notice that Edison looks a little different. His big sister June, explains; “His hands were stuck together like this... But the doctors, they pulled apart one of Edison’s hands. So, Edison’s hands are still kind of like fused together…and the other one is still tight together. “
Edison was born with a rare condition called Apert Syndrome that is characterize by fused sutures of the skull along with fused fingers and toes. He’s had 18 surgeries so far.
The Dunn family supports each other and watch out for each other. Edison’s parents are united. Josh says they take a breath and look at life; “One day at a time, one surgery at a time, one struggle at a time. There’s always a way.”
His Mom, Meghan, summed it up; “I think for every negative experience we have, we have 50 really positive experiences where people stop us in the grocery store and talk about him. Neighbors, people that are just touched by him. He’s brought a light to so many people, we have so many more positives things than negative one.”
People dealing with Apert Syndrome are just like the rest of us. They want to be accepted. They want to be your friend.
After spending an afternoon with Edison, it became clear why they refer to him as “Edison the Great.” The highlight of my day, my week and maybe even my year, happened when I asked Edison about going to preschool and his friends. I asked; “What are some your friends’ names.” Edison looked at me with his great smile and said; “You’re my friend. Knuckles. Two Knuckles. One for you. One for me.”
Together we can triumph over our trials. These are stories that deserve to be told. These are Utah Caring Stories. I’m Doug Jessop.
For more information on Apert Syndrome and how you can help, go to Good4Utah.com/Caring. The direct link for Edison the Great is:   / edigraeme