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Curing MLD: Heartache And Hope
Автор: Revvity
Загружено: 2024-11-21
Просмотров: 498
Описание: Ally Wallace, mother of Nola and Teddi, discusses Metachromatic Leukodystrophy (MLD), a rare brain disorder affecting two children, Nola and Teddi. Nola showed early signs of the disease but was diagnosed too late for treatment. Teddi, however, received an expensive gene therapy in time, which significantly improved his condition. The mother emphasizes the importance of newborn screening for rare diseases to ensure early detection and treatment, potentially saving lives and reducing long-term medical costs.
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