Giant Axonal Neuropathy, Gene Therapy and IRBs
Автор: Rare Disease Report
Загружено: 2015-05-05
Просмотров: 2184
Описание: Lori Sames, executive director of Hannah's Hope Fund talks about her daughter's rare neurologicial condition - giant axonal neuropathy - and the recent news that gene therapy may be a treatment option. Ms. Lames also comments on the need for the NIH to develop an institutional review board (IRB) specifically for gene therapy.
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