The Patient View | Rare Disease Symposium 2025

Описание: To open the 2025 Rare Disease Symposium, Elizabeth Mulkey—partner in Goodwin’s Technology and Life Sciences groups and a member of the firm’s Life Sciences Regulatory & Compliance practice—sits down with David Downing, a GRIN1 dad, and Jaime McHugh, a rare disease mom and NORD Running for Rare champion, for a conversation about their experiences as caregivers to loved ones with rare diseases. Tune in to this discussion as it highlights the importance of recognizing and centering the perspectives of families affected by rare diseases.

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To learn more about the Rare Disease Initiative, visit https://www.goodwinlaw.com/en/flex-pa...

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