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Sanfilippo/MPS: The road to diagnosis.
Автор: Courageous Parents Network
Загружено: 2017-05-01
Просмотров: 7339
Описание:
The mom of a girl diagnosed with Sanfilippo describes the long journey to her diagnosis beginning at age 2. "I knew as soon as I read the description that that was what she had. . . . The doctor told us to go home and enjoy her. There was no treatment or cure that we could do at that point."
• Sanfilippo/MPS: The road to diagnosis.
If your child has Sanfilippo or another pediatric life threatening illness, this mom shares her perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.
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