Voices in Alpha-1 Advocacy: Driving Change, Building Hope

Описание: “A disease does not only affect the patient—it affects everyone around them.”

Alpha-1 antitrypsin deficiency (AATD) is an inherited condition that often goes undiagnosed. In this powerful video, several patient advocates share their personal insights and issue a clear call to action: increase awareness of Alpha-1, accelerate early detection and advance holistic, patient-centered research.

From addressing the stigma surrounding lung and liver diseases to breaking down the complexity of an Alpha-1 diagnosis, patient organizations can be a lifeline for those impacted by a disease and their families. The experiences captured in this video reveal the strength of the Alpha-1 community and the power of advocacy to unite, uplift and drive meaningful changes for future generations.

Watch now to understand why awareness matters—and how you can help shape the future of Alpha-1 care, too.

Everyone’s experience with AATD is different, and the experience of the patient advocates featured in this video may not be representative of your own. The information in this video is for disease awareness only and is not medical advice. Always consult a health care professional for medical advice, diagnosis or treatment.

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00:00: Bridging the Gap in Alpha-1 Awareness
02:15: Advocating for Early Detection of Alpha-1 & Holistic Research
03:50: Uniting the Alpha-1 Community