ANIMATION VIDEO | Jo’s Story With β-Thalassaemia

Описание: Read Jo's Full Story at: https://thalassaemia.org.cy/news/jos-...

Script: Thalassaemia International Federation
Production: Colab Health / Ministry of Motion

TIF © Copyright 2023
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• Jo is a fictional character whose story is based on true patient experiences.

• This video presents genuine patient perspectives from the USA, Canada, Cyprus, Sweden, UAE, Egypt, Lebanon, Bangladesh, and Indonesia. Experiences differ due to varying healthcare services in these regions.

• Each thalassaemia journey is unique, influenced by diverse factors. Access to optimal clinical care, as per TIF’s International Guidelines, varies globally, from limited to comprehensive.

• The video aims to sensitize the general public with regards to the challenges people with β-thalassaemia face in their life journey with this serious blood disorder. While TIF remains committed to raising public awareness of thalassaemia and its impact on affected patients, it is also fully aware that the patient experiences and challenges with the disorder can vary across the world, and sometimes even within the same country.

• Despite commonalities, each life journey with thalassaemia is unique and affected by multiple factors, such as the prevalence of the disease, its recognition as a priority by governments, and the heterogeneity of settings and available resources for its effective prevention and care. Jo’s journey is fictional and does not refer to a specific country.

• Story elements are fictionalized and simplified for understanding. Characters are ethnically neutral to represent global diversity.

• The video aims to raise awareness about β-thalassaemia challenges universally shared yet shaped by local services.

• The story line is not specific to any country; individual experiences vary widely.

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