Patient Partner Involvement in Early Detection Studies of Kidney Cancer

Описание: This short interview with a patient advocate, Peggy Zuckerman, highlights the importance of patient partner involvement in early detection studies. The interview was developed by Rising Tide Foundation for Clinical Cancer Research and the Kidney Cancer Association.

This video is aimed at providing guidance on patient partner involvement for interested applicants in the joint call for proposals launched by both organizations. For more information, visit: Award for Early Detection and Diagnosis of Kidney Cancer - Rising Tide Foundation

Introductions: 0:00 – 0:50

The webinar on involving patient experts in studies on early detection of kidney cancer is provided by the Rising Tide Foundation and the Kidney Cancer Association, both of which support clinical cancer research.

Peggy Zuckerman's Background: 0:51 – 1:45
Peggy Zuckerman introduced herself, sharing her experience as a 21-year survivor of clear cell kidney cancer and her journey through diagnosis, treatment, and advocacy.

Challenges in Finding Information: 1:46 – 3:01
Peggy Zuckerman discussed the difficulties she faced in finding patient-friendly information and the isolating experience of not being able to communicate with other patients.

Role of Patient Advocates: 3:02 – 5:43
Peggy Zuckerman highlighted her role as the first patient advocate in renal cell carcinoma research, emphasizing the importance of patient advocacy in clinical trials.

Patient-Friendly Resources: 5:44 – 8:36
Peggy Zuckerman stressed the need for credible patient-to-patient resources and information in simple language to ensure patients understand their diagnosis and treatment options.

Early Involvement of Patient Partners: 8:37 – 10:00
Peggy Zuckerman discussed the value of involving patient partners early in the development of clinical trial ideas to ensure the study addresses patient concerns and is communicated in a way that patients can understand.