Duchenne With A Future: The Power To Live
Автор: Parent Project Muscular Dystrophy
Загружено: 2012-01-30
Просмотров: 20701
Описание:
Duchenne Muscular Dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births. Ongoing improvement in medical care for boys and young men with Duchenne has led to a new patient population emerging over recent years. It is crucial to stimulate and further develop dialogue on how to improve transition processes in this emerging population and on how to maximise their quality of everyday life. Besides progression in muscle weakness, there may be brain involvement as well. Therefore we are calling on everybody who watches this short film to 'let's put our brains together to support brain research'.
This film has been entered into the 2012 Neuro Film Festival from the American Academy of Neurology Foundation at www.NeuroFilmFestival.com. Let's put our brains together to support brain research.
A short compilation of the documentary "Duchenne With A Future: The Power To Live".
A film about the success factors of living an adult life with Duchenne Muscular Dystrophy.
For more information on Duchenne or the documentary: http://www.parentprojectmd.org
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